ME/CFS affects everyone differently, while some people are bed bound for years, on the other end of the scale is people like me, still able to live a virtually “normal” life. Still working full time. Still taking part in hobby activities. Still living. Still here. But what looks normal from the outside can be far from it on the inside. Yes, I’m capable of working full time but only because I have a generous boss who doesn’t mind me taking the odd unpaid day as leave if I need it. Yes, I attend dance and flute lessons – but only one or two per week where I used to attend them every single day. Yes, I dragged myself out of bed this morning, but no, I didn’t make my own lunch. In fact, I didn’t even choose my own clothes because I don’t have the energy. I didn’t shower, I didn’t do my hair and I don’t wear make-up. From the outside, it looks like I prefer a natural look, hair down, face bare. From the inside, I wish I had the energy, I wish I had the time to spend each morning to cover the bags under my eyes, to pull my hair into a braid, to make my own damned coffee.
This will be a year of growing through my illness; each of the prompts is designed to make me think about my illness, how it affects my life, and how I can change that for the better. I encourage you to join me and take part in your own way – let’s grow together! #growwithme
Brain fog, intention tremor, headaches, spasms, digestion problems, muscle aches, blurred vision, double vision, stiff joints, dizziness, PEM, nausea, sore throat, heart palpitations, light and sound sensitivity…
A normal day in the life of M.E.
Dance taught me that looking down in fear of falling will increase the chance of the fall actually happening. Looking up makes you focus on what comes next and increases the possibility of staying balanced and on track. Whatever you do, don’t look down.
What am I in for? Well I woke up at midnight all nauseous and sweaty, then suddenly cold and shivering, back to sweaty and by 6am the vomiting had begun and well it’s almost 2pm now and I still can’t keep water down. “Any other conditions we should know about?” Yeah, I have chronic fatigue syndrome. “Okay, but other than that you’re normally quite fit and healthy?” …
Just thought I’d post a quick update, I’ve been meaning to write for a while now and every time I sit down to start something else comes up and I’m off on a tangent!
It’s been a crazy week, my partner and I went on a little winter road trip to a gorgeous wee cottage for a few days and upon returning home I came down with a virus and ended up in A&E connected to a drip with a heart rate over 100bpm… more on both of those stories soon!
Anyway, just wanted to say I hope you’re all doing well and I’ll be back online with some proper blog posts soon.
Much love as always,