What am I in for? Well I woke up at midnight all nauseous and sweaty, then suddenly cold and shivering, back to sweaty and by 6am the vomiting had begun and well it’s almost 2pm now and I still can’t keep water down. “Any other conditions we should know about?” Yeah, I have chronic fatigue syndrome. “Okay, but other than that you’re normally quite fit and healthy?” …
Just thought I’d post a quick update, I’ve been meaning to write for a while now and every time I sit down to start something else comes up and I’m off on a tangent!
It’s been a crazy week, my partner and I went on a little winter road trip to a gorgeous wee cottage for a few days and upon returning home I came down with a virus and ended up in A&E connected to a drip with a heart rate over 100bpm… more on both of those stories soon!
Anyway, just wanted to say I hope you’re all doing well and I’ll be back online with some proper blog posts soon.
Much love as always,
I don’t tend to dwell on what it is I’m doing that helps me to cope, in fact, I’d go as far as saying I pretty much never even think about it.
How do you even begin to explain to someone who isn’t going through the illness directly what is going on? How do you prove to them that they don’t need to help you? That simply being there and trying to understand is enough. How do you show someone that there really is nothing they can do to make this go away?
How do you tell them that it’s okay?
HELP! I’ve been trying to work out an efficient way to track my life a little more thoroughly and record things like food, exercise and symptoms so I can look back over the notes and decipher what things are good and bad, what things cause symptom flares, what things increase energy levels etc. etc. It’s seems kind of common for professionals and online recommendations to suggest you keep track of everything, from weight, to food intake, to symptoms, to exercise (or lack thereof) and everything and anything else you can possibly think of that is trackable.
It’s something that I’ve thought about doing, even attempted to start a couple of times, and it’s always been ‘too hard’. I know that I need to listen to my body if I want to live a ‘normal’ life but I’m not sure that I want to be listening to my body ALL the time. Not that closely. It’s not all that pleasant to analyse… To be honest, I’m kind of worried that if I pay that much constant attention to what’s going on it might actually make me feel worse about everything. As it stands now, I’m pretty much able to tune out all of the constant niggly symptoms and just get on with life. I’m not sure that I want to train myself back into the habit of noticing all that stuff…
Like I said, I’ve tried food and symptom diaries in the past and never seem to be able to keep it up for very long. Do any of you have any tips or suggestions? Apps that work for you? Anything! Do you track these things or do lean towards the side of not wanting to focus on all the bad stuff? I’d love some more opinions on this!