ME/CFS affects everyone differently, while some people are bed bound for years, on the other end of the scale is people like me, still able to live a virtually “normal” life. Still working full time. Still taking part in hobby activities. Still living. Still here. But what looks normal from the outside can be far from it on the inside. Yes, I’m capable of working full time but only because I have a generous boss who doesn’t mind me taking the odd unpaid day as leave if I need it. Yes, I attend dance and flute lessons – but only one or two per week where I used to attend them every single day. Yes, I dragged myself out of bed this morning, but no, I didn’t make my own lunch. In fact, I didn’t even choose my own clothes because I don’t have the energy. I didn’t shower, I didn’t do my hair and I don’t wear make-up. From the outside, it looks like I prefer a natural look, hair down, face bare. From the inside, I wish I had the energy, I wish I had the time to spend each morning to cover the bags under my eyes, to pull my hair into a braid, to make my own damned coffee.
Continue reading “A Year of Growth – Week 1 – The Highs and Lows of ME/CFS”